research-article

Empathy, participatory design and people with dementia

Authors:

Stephen Lindsay,

Katie Brittain,

Daniel Jackson,

Patrick OlivierAuthors Info & Claims

CHI '12: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

Pages 521 - 530

https://doi.org/10.1145/2207676.2207749

Published: 05 May 2012 Publication History

Abstract

We describe the development, application and evaluation of a design method tailored for working with people with mild to moderate dementia. Our experiences with the approach highlighted areas where designers and participants held radically different views. The tenet of our approach was that to overcome these differences we needed to create an empathic relationship between participants and designers. To achieve this we modified participatory design techniques to foster respectful engagement with participants in the development of a digital aid to facilitate "safe walking". The process begins with broad qualitative scoping and design work then moves to developing personally tailored, individual designs to further exploration of the experiential elements of the domain while reducing the need for the participants to engage in abstract thought. Reflection highlights a number of important areas that demand consideration when undertaking research in this area and, more generally, when performing design work with people with dementia.

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Cited By

Spalla GYaddaden AKenfack Ngankam HGouin-Vallerand CBier N(2024)Assistive technologies designed to support executive function impairments while promoting independence: A scoping reviewJournal of Rehabilitation and Assistive Technologies Engineering10.1177/2055668324126865811Online publication date: 1-Aug-2024
https://doi.org/10.1177/20556683241268658
Nevsky ABircanin FCruice MWilson SSimperl ENeate T(2024)"I Wish You Could Make the Camera Stand Still": Envisioning Media Accessibility Interventions with People with AphasiaProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675598(1-17)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675598
Davis J(2024)Beyond empathy: Role-Taking as a structural approach to participatory designProceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual10.1145/3661790.3661800(46-51)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3661790.3661800
Show More Cited By

Index Terms

Empathy, participatory design and people with dementia
1. Human-centered computing

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Published In

cover image ACM Conferences

CHI '12: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems

May 2012

3276 pages

ISBN:9781450310154

DOI:10.1145/2207676

General Chair:
Joseph A. Konstan
University of Minnesota
,
Program Chairs:
Ed H. Chi
Google
,
Kristina H��k
Mobile Life at KTH

Copyright � 2012 ACM.

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SIGCHI: ACM Special Interest Group on Computer-Human Interaction

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New York, NY, United States

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Published: 05 May 2012

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CHI '12: CHI Conference on Human Factors in Computing Systems

May 5 - 10, 2012

Texas, Austin, USA

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Overall Acceptance Rate 6,199 of 26,314 submissions, 24%

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Cited By

Spalla GYaddaden AKenfack Ngankam HGouin-Vallerand CBier N(2024)Assistive technologies designed to support executive function impairments while promoting independence: A scoping reviewJournal of Rehabilitation and Assistive Technologies Engineering10.1177/2055668324126865811Online publication date: 1-Aug-2024
https://doi.org/10.1177/20556683241268658
Nevsky ABircanin FCruice MWilson SSimperl ENeate T(2024)"I Wish You Could Make the Camera Stand Still": Envisioning Media Accessibility Interventions with People with AphasiaProceedings of the 26th International ACM SIGACCESS Conference on Computers and Accessibility10.1145/3663548.3675598(1-17)Online publication date: 27-Oct-2024
https://dl.acm.org/doi/10.1145/3663548.3675598
Davis J(2024)Beyond empathy: Role-Taking as a structural approach to participatory designProceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual10.1145/3661790.3661800(46-51)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3661790.3661800
Nourriz SBezabih ASmith C(2024)On the Design Risks of Empathy FatigueProceedings of the 3rd Empathy-Centric Design Workshop: Scrutinizing Empathy Beyond the Individual10.1145/3661790.3661798(34-39)Online publication date: 11-May-2024
https://dl.acm.org/doi/10.1145/3661790.3661798
MacDonald SFreeman EPollick FBrewster S(2024)Prototyping and Evaluation of Emotionally Resonant Vibrotactile Comfort Objects as a Calming Social Anxiety InterventionACM Transactions on Computer-Human Interaction10.1145/364861531:4(1-48)Online publication date: 19-Sep-2024
https://dl.acm.org/doi/10.1145/3648615
Qiu LBlair JAbdullah S(2024)Managing Finances for Persons Living with Dementia: Current Practices and Challenges for Care PartnersExtended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613905.3650809(1-7)Online publication date: 11-May-2024
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Debnath ALahnala AGen� HSoubutts ELahav MHorne TMeijer WPai YHsu YBarbareschi GVerma HMauri A(2024)EmpathiCH: Scrutinizing Empathy-Centric Design Beyond the IndividualExtended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613905.3636297(1-7)Online publication date: 11-May-2024
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Houben MLee MFoley SMorrissey KBrankaert R(2024)HCI Research in Sensitive Settings: Learning Researcher Reflexivity, Ethical Conduct and Empathy in Participatory Design ApproachesExtended Abstracts of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613905.3636280(1-4)Online publication date: 11-May-2024
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Falk JBlumenkranz AKubesch MVetter RHofer LFrauenberger C(2024)Designing Diverse Pathways for ParticipationProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642240(1-16)Online publication date: 11-May-2024
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Fontana De Vargas MYu CShane HMoffatt K(2024)Co-Designing QuickPic: Automated Topic-Specific Communication Boards from Photographs for AAC-Based Language InstructionProceedings of the 2024 CHI Conference on Human Factors in Computing Systems10.1145/3613904.3642080(1-16)Online publication date: 11-May-2024
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